Art by Caitlin Smits
A MUSEUM ON INVISIBLE ILLNESSES AND DISABILITIES. WHY?
The Lyme Museum is an independent museum with an education hub, a digital platform, a physical collection and an international community, hosted at the Documentary Media Centre in Leicester (UK). We are the first museum dedicated to exploring the lived experiences of invisible illnesses and disabilities through materiality and storytelling. We collect objects, stories, flat lays and artworks with one aim: making the invisible visible, one flat lay and one story at a time.
We are really, really interested in stuff! The everyday mundane objects that become part of our identity as chronically ill and/or disabled people. Those are not always the objects that museums display, and yet they are the ones that make the invisible visible.
In museums, we call this materiality, but really, it's stuff! And stuff is great! From mobility aids, to pills, to objects of comfort, there is so much to talk about, and that's why we are here. Changing the narrative on disability and chronic illness through objects and first-person narratives.
The Lyme Museum is run by individuals who are passionate about making the world a better place. How? By dedicating our time to sharing stories around the lived experience of invisible illnesses and disabilities. We are 100% disabled and women led.
Dr Angela Stienne
Founder & Content Director
I am a museum historian, author and storyteller from Paris. I work at the intersection of medical humanities, museum studies and creative storytelling, with a track record in leading engagement on complex issues related to bioethics and the human body. I am passionate about giving underrepresented communities a voice and transforming narratives in the heritage sector and higher education. I have chronic Lyme disease and co-infections and hypermobility syndrome.
Curator In Residence
I am a PhD student at the University of Brighton. My research is focused on the perception of cultural heritage among people with different backgrounds. My aim is to allow communities to feel more involved and actively participate in the activities and decisions involving their cultural heritage for a more inclusive interpretation.
I have severe endometriosis and want to contribute to a change in the narrative of this total body condition.
Artist In Residence
I am an information professional and art historian. I work at the intersection of information literacy and disability advocacy in higher education. I am impassioned to learn more about how different persons seek out and utilize information, as well as encouraging students to enjoy and engage in different research processes. I have idiopathic intracranial hypertension, ehlers danlos syndrome, reynauds, ADHD, and autism.